My Diagnosis Change + Remix to Remission

Thank you for all the good ju-ju, prayers, and humor! I made it through the fun time colonoscopy just fine.

My diagnosis has changed.

The CT showed inflammation, and the colonoscopy confirmed that I have “active disease” but due to the location of the lesions and the biopsy, my new doc switched my diagnosis from Crohn’s disease to ulcerative colitis.

My family is all pretty stoked about this, because technically ulcerative colitis has less playing room than Crohn’s disease, which can affect any area of the digestive tract. Ulcerative colitis, however, is limited to the colon. This is, in a way, a small victory.

Weekend recap:

Zack and I had a few friends over. Then, I made piña coladas for everyone (except me), and my punny friend Becca proudly dubbed them “piña colitis”. I like her.

This was also the night I ruined my low FODMAP elimination diet and had to start over, because I ate chicken fried steak, fried pickles, and a few fried okra. It thought it was worth it, but now I’m kinda sad about starting all the way over. These are things to think about when chicken fried steak is staring you in the face. Just.Say.No. grr

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We went grocery shopping and found the largest carts known to man. Shoutout to my sweet sister and her BF for visiting!

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Reflections & Remission:

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One year ago, finish line at the NOLA Rock n’ Roll Half-Marathon

This weekend a ton of people ran the Rock n’ Roll Half Marathon in New Orleans, and many of them fundraised for cures to Crohn’s and Colitis with Team Challenge for the Crohn’s and Colitis Foundation of America. These people are my heroes!

And this got me thinking. I’m completely ready to move on, and I’m tired of having goals for tomorrow. I’m ready for action and hard work. I’m fed up with feeling fatigued. I get it. Sometimes getting better requires rest. But I’m tired of feeling tired. I want to be better. So, I’m starting with (very) small goals. This week, I’m running.

Yes, I’m past due for an infusion. Yes, I just spent all day juggling insurance phone calls with symptoms with naps. But I have to start moving again, for the sake of my sanity. I hear so often “listen to your body” and my mind is an important team member of my body. My mind needs a run.

Running mileage goals for the week: 3 miles.

I’m being real here. This is my space. This is my exhale. So, yes. Three small miles for a whole week are my goal.

One foot in front of the other. Moving forward. This is the remix to remission 🙂

-Stacey

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